-
Manipu What?

I have been thinking about this topic lately, and I just read a post about a teenager with an FASD, and how he was manipulated by his “friend” to go into a store with a fake $100 dollar bill and make a purchase. So, I took that post as a final sign to write about… MANIPULATION. SUCH a long word for something so hard to detect.
Anyone can be manipulated. You don’t have to have a disability to succumb to it. I have two memories that I now know were manipulative situations. The first one happened when I was maybe 10 or 11? We were at my grandma’s, and there was this neighbor boy, who was about 13. He would come over to hang out, and after pretending to want to play games with me, like pool, he told me we should play a game under the pool table. I was like, “sure, why not?” So under the table I went. Well, he asked me to do things, and I did, because he was my new friend, an older friend, and I wanted him to like me. After it happened, he left, and I went to have dinner with my family upstairs. I ended up telling everyone what happened, because I felt sick over it. My parents assured me it was not my fault, and the last time I saw him was that night, when my dad took me to get ice cream. The kid was riding his bike down the street, looking to come “play.” MY dad looked at him and yelled, “GO HOME, AND DON’T COME BACK!” I never realized that kid had manipulated me until I became an adult.
The second time I remember was when I was in high school. There was a girl on my track team, and one of her friends who was in a couple of my classes, and occasionally we would all eat lunch together. These girls called my house one day, and asked if they could come over and hang out. I was beside myself with excitement, because I had never been asked to hang out with them outside of school before. They came over and hung out for maybe 45 minutes? Then they left to go to a party. My mom found out they left almost as soon as they got to my house, and thought that was strange. I told her they had a party to go to. My mom looked at me and told me, “They used you. They used YOU and THIS HOUSE and US. They told THEIR parents they were going to hang out at OUR house, but really are now at a party.” I didn’t want to believe it. I got mad at my mom, and stormed off. I thought about the events, and later that night, my mom came into my room to talk to me about what had transpired. I realized in that moment I had been taken advantage of. I remember crying and yelling, “Why would they do this?” I was so hurt. It was a horrible feeling. I really thought they were my friends. I called the one girl the next day, and told her how upset my mom and I were at the situation. The girl and her friend wrote my mom and I each an apology letter. So, I guess something good came out of it , but i remember to this day how my heart felt. Looking back at these moments in my life, I realize my FASD contributed to me being easily manipulated. I am 42 years old, and still find myself in situations where I can be easily manipulated. I see the signs now, and I usually run events and situations by my husband , best friend, and/or my parents. I have gotten more aware of bad situations as I have aged, and matured.
For those with an FASD reading this blog, stop and think before starting an activity. If there are people you know from school, but don’t really hang out with outside of school on a regular basis, be careful. Just always take a moment or ten to think about the situation you are in, or may be in. For those CAREGIVERS out there to those with an FASD, drop me a line, a question, a comment. Keep doing you, be on the alert, and keep lines of communication open with your kiddos.
-
Community Strong
Community is the foundation of togetherness. It ties families together from all different backgrounds, with common goals of uniting families, creating friendships, learning about one another, and having one another’s backs.
There are thousands, if not millions of communities worldwide. In my walk with Fetal Alcohol Spectrum Disorder, I have discovered an INCREDIBLE COMMUNITY, with mini communities in nooks and crannies. I have been in awe, and inspired by the communities I have read about and met through stories, interviews, and most recently, the first annual RunFASD 5k that took place in September of 2021. So many communities in the United States banded together and ran, walked, and biked 3.1 miles to educate others about FASD. There were doctors, educators, parents, and children who came together to raise awareness of FASDs.
The FASD community is so incredible. It is created with communities within communities, which are made up of awareness, a desire to learn more and to do better. They have grit and tenacity. They reach out to one another, parents create friendships, and children are introduced to other children that have FASDs. I am blessed to be immersed in the FASD community. When I first got diagnosed, I immersed myself in websites to swell my brain with FASD information. I perused Facebook for FASD groups, and I believe Flying With Broken Wings was my first online FASD community. Everyone was welcoming, they listened to my story, they answered my questions regarding my quirks in an FASD world, and I learned skills and coping mechanisms when I have sensory overload. I have learned there are FASD communites all over the world, and sub communities within those. I have noticed that no matter where in the world an FASD community is, no matter what language they speak, they are each after the same goal. Learning new ways to support those with FASDs, and being there for one another when it feels like they are at the end of their patience.
Where I live, there is no FASD community. Where I live, FASD is not well known. It is not taught in detail to educators, pediatricians or OBs. I want to change this. I am one person, but a community begins with one. One person with a desire to have others join them for a common cause, a common belief. I have this desire, I just have to take a deep breath, and take the first step. I am reminded of the quote from Field of Dreams: “If you build it, they will come.” I hope so. Here is to all those FASD communities working together, helping one another, leaning on each other. Here is to new communities being created, one open mind at a time.

First Annual RunFASD 2021 -
MYTH OR REALITY…

1. A pregnant woman drinking a glass of wine or 1 beer a day is ok throughout her pregnancy.
MYTH. The CDC STATES THAT NO AMOUNT OF ALCOHOL IS SAFE FOR BABY IN UTERO, AT ANY TIME (www.cdc.gov, 2018). Most women do not know they are pregnant until 4-6 weeks after conception. The baby’s brain begins developing in the third week of gestation.
2. 50% of individuals with an FASD have facial features of an FASD.
MYTH. Only 5-7% of those with an FASD have facial features, and sometimes as one grows and matures, the facial features subside. A couple facial features that are common are a flat, thin upper lip, and palpebral fissures in the eyes (distance between the left and right corners of each eye, which can give an optical illusion that the eyes are far apart from one another).
3. FASDs in the United States and Canada are more common than Autism.
TRUTH. FASDs occur in 1 out of 20 school age children in the united states. FASDS are 1.5 times as common as Autism in the United States, and 2.5 times as common as Autism in Canada. (www..fasdunited.org). 16 million people in the United States have an FASD.
4. FASDs are Curable:
MYTH. FASDs are NOT curable. They are irreversible brain damage that occurs in utero. They are the ONE brain disability that is 100% PREVENTABLE.
5. The annual cost for an individual with an FASD in the United States is around $31,000.00.
TRUTH. This cost includes the costs incurred for those in the criminal justice system, which occurs due to those with an FASD having trouble with impulse control and understanding cause and effect. The part of the brain that controls these functions is the Frontal Lobe (Executive Functioning) (www.proofalliance.org)
-
MYTH OR REALITY?

- A pregnant woman drinking a glass of wine or 1 beer a day is ok throughout her pregnancy. (MYTH or TRUTH?)
- 50% of individuals with an FASD have facial features of an FASD. (MYTH or TRUTH?)
- FASDs in the United States and Canada are more common than Autism. (MYTH or TRUTH?)
- FASDs are curable (MYTH or TRUTH?)
- The annual cost for an individual with an FASD in the United States is around $31,000.00. (MYTH or TRUTH?)
TYPE YOUR ANSWERS IN THE COMMENTS SECTION, AND TUNE IN TOMORROW FOR THE ANSWERS!
#fasd, #fasdawareness, #runfasd, #disability, #education, #fasdrespectact